Since Compass launched last year, our team of case managers has fielded more than 5,000 requests from people living with cystic fibrosis and their families. Today, we're excited to continue to offer support to the CF community with our new "Ask a Case Manager" blog series!
Since Compass launched last year our team of case managers has fielded

Ask a Case Manager: Health Insurance, Living Expenses, and Clinical Trials

on.cff.org
Carrie Graf
Emily May
Your story has the power to help make a difference in the health care debate. Watch to see two of our Teen Advocacy Day interns speak with Congressman Jim McGovern and Congressman Brian Fitzpatrick to learn why it’s important to contact your elected officials. Then after watching the video, call your Senator today and tell them why adequate, affordable care matters to the CF community.

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Sharon Murray
When it comes to your cystic fibrosis care, it's often the little moments that matter the most. Today on the CF Community Blog, Melanie Abdelnour, an adult living with CF, shares a few examples from the CF community of small moments that had a big impact in their personal CF care.
When it comes to your cystic fibrosis care its often the little

Why Little Moments Matter When It Comes to CF Care

on.cff.org
Karen Hoffman
Scot Rittenbaum
Yesterday, more than 80 teen volunteers joined us in Washington, D.C. for our ninth annual Teen Advocacy Day! Check out some of the highlights from their meetings with their elected officials on the Hill.
Yesterday more than 80 teen volunteers joined us in Washington DC for

Teen Advocacy Day 2017

on.cff.org
Lori Brown
Patty Morris
Margaret Drexel
Today, the U.S. Senate released the text of its health care reform bill, the Better Care Reconciliation Act (BCRA), and reports indicate a Senate vote is likely next week. The bill is unacceptable for people with cystic fibrosis because it would drastically cut funding for Medicaid and remove protections against annual and lifetime caps. We implore the Senate to oppose this bill.

You can...
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Today the US Senate released the text of its health care reform

Senate Health Care Bill Fails to Adequately Protect People with Cystic Fibrosis

on.cff.org
Ashton Alexander
Susie Parcero Steel
Cindy Marsh Waldron
Representing 38 states across the country, 81 teens are in Washington, D.C. today for our ninth annual Teen Advocacy Day! Together, they will meet with their elected officials to urge them to support reform policies that ensure health care coverage is adequate, affordable, and available, and to support robust funding for the National Institutes of Health (NIH) and U.S. Food and Drug...
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Representing 38 states across the country 81 teens are in Washington DC
Craig Gray
Trish Coulter Farano
Haley Friedman
In honor of International Yoga Day, Aimee Lecointre, an adult living with cystic fibrosis and a registered yoga teacher, demonstrates her favorite poses for stretching her upper body and shares how yoga has helped her manage her CF.

Check out a sneak peek, then head over to the blog to see the full video and learn more: [ On.cff.org Link ]
Lauren Marie
Lori Brown
Amy Marie
Insight CF voting closes in less than 24 hours – take the survey now and tell us which research questions are most meaningful to you!
Insight CF voting closes in less than 24 hours take the survey

Help Us Choose the Next Patient Registry Research Project!

on.cff.org
As the U.S. Senate debates the American Health Care Act (AHCA), 162 volunteers from 38 states will be coming to Capitol Hill to make sure lawmakers know about the needs of the cystic fibrosis community, including robust funding for Medicaid, adequate protections for people living with preexisting conditions, and a continued ban on annual and lifetime coverage caps.

Learn more about health...
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As the US Senate debates the American Health Care Act AHCA 162

Milestones in Health Care Reform

on.cff.org
Sean Fowler
Rhonda Riley-Whisenant
Craig Gray
If you have a chronic disease like cystic fibrosis, you may be familiar with spending a lot of time in a hospital room. Ashley, an adult living with CF, brings stuffed animals, pillows, and a blanket whenever she goes to the hospital.

Let us know in the comments: What do you bring with you during a hospital stay to make your room feel more like home?
If you have a chronic disease like cystic fibrosis you may be
Marie Booth
Jazmine Stiggins
Brianne Houston
Happy Father's Day to all dads living with cystic fibrosis and to all dads of children with CF. Your strength is an inspiration to us all!
Happy Fathers Day to all dads living with cystic fibrosis and to
Karen Bradshaw
Emma-clare Yeates
"Although my 'day in the life…' might never be same as it once was, I am okay with that. Why? Although CF took away a daily routine that the majority of the world has, it has given me something far more valuable. It has given me the opportunity to go through the remaining part of life with my eyes open."

Today on the CF Community Blog, Andy Drooker shares how he readjusted his life after...
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Although my day in the life might never be same as it

A Daily Routine To Make Sure Every Day Is Father's Day

on.cff.org
Betty Stewart
Scot Rittenbaum
Dee McWilliams
Thank you, Senator Tom Carper, for helping us raise cystic fibrosis awareness on the Senate floor by sharing Michael Davis' story.
Joseph Bernardi
Lori Brown
Earlene Palmer
The U.S. Senate is expected to vote on the American Health Care Act later this month, before the July 4 recess, and it is critical that people living with cystic fibrosis have access to high-quality, specialized care. Our community needs assurance that health care reform will adequately protect people with pre-existing conditions, maintain Medicaid expansion and current financing, and continue...
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The US Senate is expected to vote on the American Health Care

Tell Congress to Oppose the American Health Care Act | CF Foundation

on.cff.org
Elizabeth Marchand Therrien
Maureen Baldwin
Joyce Ed Gardner
"I want to use my voice to inspire others to value themselves and speak for those who won't speak up for themselves. There's no turning back now so I jumped right in."

Fanny Vlahos, an adult living with cystic fibrosis, opens up on the CF Community Blog about why she is sharing her story about complications post-transplant.
I want to use my voice to inspire others to value themselves

Using My Voice to Help Improve Lung Transplantation

on.cff.org
Harula Eliopoulos
Teen Advocacy Day is one week from today! In just seven days, 162 volunteers from 38 states will come to Washington, D.C. to meet with their members of Congress and advocate for adequate, affordable health care for their loved ones living with cystic fibrosis.

Learn more about priorities that guide the Foundation’s work on health care reform: [ On.cff.org Link ]
Teen Advocacy Day is one week from today In just seven days

Priorities for the CF Community in Health Care Reform

on.cff.org
Janet LaFiandra Weiner
On average, people living with cystic fibrosis spend two hours daily on treatments, including airway clearance techniques (ACTs) to clear thick, sticky mucus from their lungs. Watch this video to see how different ACTs work including active cycle of breathing, chest physical therapy, and high-frequency chest wall oscillating vest.

Learn more about ACTs: [ On.cff.org Link ]
Craig Gray
Jason Stewart
Rose Byrnes
Insight CF is a way for the CF community to contribute to the Foundation's research! Take our survey and vote on which questions you’d like to see researched using our patient registry.
Insight CF is a way for the CF community to contribute to

Help Us Choose the Next Patient Registry Research Project!

on.cff.org
With Teen Advocacy Day just eight days away, Cystic Fibrosis Foundation intern and Teen Advocacy Day participant Michaela Myerson shares how she got involved in advocacy, the importance of telling your story to your members of Congress, and why she keeps coming to Washington, D.C. every year to advocate for her brothers who have CF.
With Teen Advocacy Day just eight days away Cystic Fibrosis Foundation intern

Tell Your CF Story at Teen Advocacy Day

on.cff.org
Janet LaFiandra Weiner
Jodie Plimley Leibowitz
Lori Zarch
Every day, we're inspired by people living with cystic fibrosis who overcome challenges in the face of extreme adversity. Today, we're especially inspired by Steven Jenkins, an adult living with cystic fibrosis who graduated from Seattle University this past weekend, 15 years after he started.
Every day were inspired by people living with cystic fibrosis who overcome

After 2 lung transplants, 1 brain tumor and 15 years of hardship, Seattle U student earns a degree

on.cff.org
Laura Syron
Janet LaFiandra Weiner
Adriana Treadway