Interested in learning more about the transplant journey? If you are an adult with cystic fibrosis, you’re invited to join the first-ever CF MiniCon, which will be all about the transplant process. Created by and for adults living with cystic fibrosis, CF MiniCons are a virtual space to connect and have an honest and open dialogue about a specific topic.

Register for the CF MiniCon focused on...
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Interested in learning more about the transplant journey If you are an

CF MiniCon: Transplant

on.cff.org
There are many different ways you can spread cystic fibrosis awareness. Whether that's with a vanity license plate that says "65Roses," or your own YouTube channel with videos about living with CF, we love learning about all of the unique, creative ways you're educating others about CF.

Tell us in the comments: How are you raising CF awareness in your local community? We'll share some of your...
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There are many different ways you can spread cystic fibrosis awareness Whether
Brian Binker
Amy Blackburn
Brenda Rainey Price
Everyone living with cystic fibrosis and their family members have a valuable perspective and voice that should be heard. Get involved and sign up for Community Voice!
Everyone living with cystic fibrosis and their family members have a valuable

Sign up for Community Voice!

on.cff.org
Watch a sneak peek of our newest "Living Today, Adding Tomorrows" video featuring Jenny Stump, a 31-year-old living with cystic fibrosis. In the clip, hear how Jenny's life and priorities changed after the birth of her son, Henry.
Savonya Heikkila
Opal Rebecca Carnes
Janet Berriman Vincent
Each year, our volunteers raise funds and awareness for cystic fibrosis through unique fundraising events. This week on the CF Community Blog, we're sharing one of favorites: the Charleston Mom Prom. Read how Sara Shiveler, a mother of a child living with CF, raises thousands of dollars at Mom Prom every year.
Each year our volunteers raise funds and awareness for cystic fibrosis through

Events We Love: CF Mom Prom

on.cff.org
Jim Schroeder
Serina Kimberly
Jamie Britt
"But, surprisingly, this rare disease has proven itself to be the ultimate screening tool. It might cause those of us battling it each day to lose more relationships a whole lot faster, but in the end, it's a blessing in that it allows us to gain the right ones."

Lea Faraone, an adult living with cystic fibrosis and one of our 2017 Great Strides ambassadors, shares how having CF has helped...
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But surprisingly this rare disease has proven itself to be the ultimate

Sometimes CF Means Clarifying Friendships

on.cff.org
Laura McLean Homassel
Pamela Magill George
Elizabeth Marchand Therrien
Super Striders, like Brenda Johnson Ray from Raleigh, North Carolina, receive special recognition at their Great Strides walks – like fun swag and special shout-outs. Raise $500 and you could be a part of this group! Are you a Super Strider?

Here’s an easy plan to get there: [ On.cff.org Link ]
Super Striders like Brenda Johnson Ray from Raleigh North Carolina receive special
Cheriz: My Life with Cystic Fibrosis
Billy Clark
We’re incredibly grateful for our National Elite Sponsor AbbVie, and our National Premier Sponsor Walgreens, for their support in the fight against cystic fibrosis!
Were incredibly grateful for our National Elite Sponsor AbbVie and our National
Bonnee Axler Binker
Cheriz: My Life with Cystic Fibrosis
Chrissy Caruso
Check out a sneak peek of our newest “Why Volunteer” video featuring Kristen Brockman, whose sister had cystic fibrosis. In this short clip, hear what motivated Kristen to volunteer.

Sign up to be a teamMATE: [ On.cff.org Link ]
Betty Calande
Watch this animation to understand how CFTR modulators work for people with F508del mutations.

To learn more about drugs in development to restore CFTR function, visit our drug development pipeline: [ On.cff.org Link ]
Maria Pia Campodonico
Mary Jane Brimhall
Stacy Sparkle
If you or your family member has cystic fibrosis, we want to hear from you! Your stories, experiences, and feedback about life with CF can help drive improvements that will benefit everyone affected by CF. Sign up to join Community Voice today!
If you or your family member has cystic fibrosis we want to

Sign up for Community Voice!

on.cff.org
Cindy Waldrop
Donna Strickland
Molly M
Last week, you met Lea, one of our 2017 Great Strides ambassadors. Watch today's video to meet our other ambassador, Willem Wery!
Tina Green Wilkerson
Judy Morris
Lea Faraone
There are many different ways to volunteer with the CF community, from participating in Great Strides to volunteering at your local office. Let us know in the comments: How are you involved in your local CF community? We’ll share some of our favorite stories and photos next in week in honor of National Volunteer Week.
There are many different ways to volunteer with the CF community from
Erin Vaden
Jean Klug
Keith Jackson
As people with cystic fibrosis live longer, healthier lives, we’re working to continuously add new sections to CFF.org to help you make informed decisions about your health. That’s why we’re excited to share our newest section: Family Planning and Parenting With CF. If you’re thinking about whether or not having a child is right for you, or if you’re already a parent, let us know what you think!
As people with cystic fibrosis live longer healthier lives were working to

Family Planning and Parenting With CF

on.cff.org
Brigette McKern
Amber Weatherholt
Mariah Hammond
The 2017 Impact Grant program application is now available! Check out the CF Community Blog to learn how to apply, and read how three of last year’s recipients are making a difference in the community with their Impact Grant.
The 2017 Impact Grant program application is now available Check out the

Harnessing the Power of Community: Impact Grants 2017

on.cff.org
Watch Bonnee Binker and Megan Kanofsky, two of our 2017 Volunteer Leadership Conference attendees, reflect on their experience at VLC.

Learn more on the blog: [ On.cff.org Link ]
Throughout his 31-year-long career, Willem Wery, an adult living with cystic fibrosis and a Great Strides ambassador, kept his CF a secret at work. Today on the CF Community Blog, he shares why he made that decision.
Throughout his 31yearlong career Willem Wery an adult living with cystic fibrosis

Why I Kept My CF a Secret at Work

on.cff.org
Sue Kelm
Cindy Waldrop
Bryce Highman
"Because of the struggles I’ve faced with this disease, I feel that I sometimes tend to have a perspective on life unlike most. I see the little moments as huge ones, I celebrate the smallest of wins, and I embrace every minor detail that life has to offer."

Jordan Miller, an adult living with cystic fibrosis, opens up today on the CF Community Blog about seeing the silver lining because of...
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Because of the struggles Ive faced with this disease I feel that

How CF Shaped My Positive Outlook

on.cff.org
Christi Cronin Fifield
Dean Quaid Puckering
Mary Ann Neblett
If you’re caring for someone living with cystic fibrosis, you may have questions about how insurance works or where you can find financial assistance for your loved one. Our new series, Ask a Case Manager, aims to answer those questions and more!

Submit your questions today: [ On.cff.org Link ]
If youre caring for someone living with cystic fibrosis you may have
Prior to getting a double-lung transplant, Eirik Gumeny, an adult living with cystic fibrosis, had never thought about planning for his future. Now that he's 2 1/2 years post-transplant, Eirik shares how he is finding new purpose.
Prior to getting a doublelung transplant Eirik Gumeny an adult living with

Finding New Purpose After Getting New Lungs

on.cff.org
Carmen Frederick
Michelle Jaecksch
Michelle Michelle