Having trouble getting your picky toddler with cystic fibrosis to eat? Jaclyn Strube, a mom to a child with CF, shares her tips for ensuring her son is getting the calories he needs.

The Butter Cracker Stacker: Piling on Major's Calories

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The countdown is officially on – we’re one week away from March on the Hill! Even if you won’t be joining us in Washington, D.C., you can still be an advocate for people living with cystic fibrosis. Learn how you can contact your members of Congress to protect vital health care coverage for yourself or loved ones with CF.

Take action now: [ On.cff.org Link ]

Tell Congress to Protect Your Coverage

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For the next photo in our Beyond the Lab series, we’re pleased to introduce Nicole Hamblett, Ph.D. As a scientist at Seattle Children's Hospital, she designs and analyzes clinical trials with an emphasis on pediatric and rare diseases.

“I had done my graduate research in a different setting where I felt so far removed from patients in terms of what I was doing as a biostatistician -...
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Congratulations to Continuing Education for Caregivers/Individuals with CF, one of our seven Impact Grant recipients! The group will use their Impact Grant to form a nonprofit that will support people living with cystic fibrosis in following their treatment schedules, share information about how they can take care of themselves or support someone else as a caregiver.

Learn more: [ On.cff.org...
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Telling your cystic fibrosis story is personal. Get tips from Abi Green, senior grassroots advocacy manager at the Foundation, for telling your CF story so your elected officials are listening, engaged and inspired to take action.

4 Tips for Telling Your CF Story to Legislators

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How can you help raise awareness for people living with cystic fibrosis and for your local Great Strides walk? Donate your cover image to show your support!

To download, click “Options” at the bottom of an image, then select “Download.” You can then save the image to your computer and upload as your Facebook cover photo.
When you're a spouse of someone living with cystic fibrosis, it can be easy to forget to take care of yourself, too. Today on the CF Community Blog, Bradi Stocks, whose husband has CF, shares why self-care is important.

Taking Care of Yourself When Your Spouse Has CF

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Growing up with cystic fibrosis, Adam Jacques' mantra had been "my lungs will not limit me." Now, the 38-year-old spends his days hooked up to an oxygen tank. On The Guardian, read how Adam is coming to terms with his new reality.

My mantra used to ​be ​'my lungs will not limit me​' - now I'm on oxygen 24/7

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"In the beginning, I was really struggling with how to do something to help my grandkids. I felt guilty not being next door to them. I thought maybe I could volunteer."

Barb Kuske, who has volunteered for more than seven years with the Foundation and has two grandchildren living with cystic fibrosis, shares what inspired her to become a CF Foundation teamMATE.
We’re thrilled to award one of our seven Impact Grants to the Cystic Fibrosis Lifestyle Foundation for their Recreation Grant Program! The Impact Grant will allow CFLF to help people living with cystic fibrosis stay physically active through gym memberships, yoga classes, swimming lessons and more.

Erin Evans, the program coordinator for Recreation Grants at CFLF, was inspired to do the...
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Are you or a loved one living with cystic fibrosis? You can help ensure policymakers understand the critical importance of building a health care system that benefits all Americans. Contact your members of Congress today to share your personal story, and ask them to ensure the care and coverage needs of people living with CF are protected.

Tell Congress to Protect Your Coverage

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Today, we’re excited to kick off our Beyond the Lab photo series with Eric Sorscher, M.D., a professor at Emory University whose work focuses on cystic fibrosis research that translates experimental findings into potential treatments. Stay tuned over the next few weeks to read more stories from researchers, scientists and professors who have dedicated their careers to studying CF and providing...
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As we finalize preparations for March on the Hill, we’re doing a little #TBT to three of our recent state advocacy days in California, Florida and New York! Volunteers from the CF community met with their elected officials to ask them to support funding for key health programs and to ensure all people with cystic fibrosis have access to high-quality, specialized care.
On March 2, family, friends and advocates from the cystic fibrosis community will join us in Washington, D.C. for our 11th annual March on the Hill! Volunteers will meet with members of Congress to educate them on the complex health needs of people living with CF and to advocate for adequate, affordable health insurance.

Even if you’re not joining us in D.C., you can get involved with...
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Tell Congress to Protect Your Coverage

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"I don’t know how I stayed with him so long. He always had to be next to me for just about everything, and it started to drive me a bit bananas. As time went on, I unfortunately came to realize that even though Pablo treated me pretty well, I needed more substance and less cling wrap."

Coming out of a serious relationship can be challenging for anyone. Today on the CF Community Blog, Rima...
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An Ode to My Boyfriend, Frank the Tank

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We ❤ you. Happy Valentine's Day from all of us at the Cystic Fibrosis Foundation!
Searching for the perfect date with your valentine? Sign up for Great Strides together! Great Strides provides a fantastic opportunity for family, friends and loved ones to come together to help make a difference in the lives of people living with cystic fibrosis.

Register for Great Strides

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We’re pleased to introduce one of the recipients of our Impact Grants, Empower Project! Empower Project is an online health coaching and personal training program for individuals living with cystic fibrosis. With the assistance of the Impact Grant, they look forward to working in partnership with individuals in the CF community who are motivated to create positive change in their lives through...
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Just in time for Valentine's Day, we've rounded up our top three posts from the CF Community Blog on love. Grab the tissues!

Top 3 Most Romantic Blog Posts of 2016

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Whether you have a regular clinic visit or you’re in for an emergency, kind words or a smile from a member of your cystic fibrosis care team can make your visit feel less stressful.

Let us know in the comments: What’s something your CF care team has done or said that made you feel more comfortable talking about any trouble you were having with your CF treatments? Your responses may be shared...
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