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Cystic Fibrosis Trust
1 hours 23 minutes ago. Facebook
There's only 19 sleeps to go, so CF News counts down to CHRISTMAS!
We're blown away by the amount of people who have already written to their MP about the Orkambi debate!

Want to help us get over the 1000 mark? Ask your MP to share your story at the debate next week.

Access to Orkambi in England

campaigns.cysticfibrosis.org.uk
Cystic Fibrosis Trust
yesterday at 10:55. Facebook
Thanks to the campaigning efforts of our community, yesterday we were waking up to the news that NHS England has approved Kalydeco for 2-5 year olds with cystic fibrosis.

Want to know more about Kalydeco? Check out cysticfibrosis.org.uk/Kalydeco

Cystic Fibrosis Trust - Green light for Kalydeco

cysticfibrosis.org.uk
Cystic Fibrosis Trust
12/04/2016 at 06:00. Facebook
NHS England says YES to KALYDECO for young children

Following sustained pressure, NHS England has made Kalydeco available to 2-5 year olds. The treatment is already being prescribed to children with cystic fibrosis in Scotland and it is expected that Wales and N.Ireland will follow suit. Kalydeco will be available on prescription by January. 51 children who have one of the following mutations...
View details ⇨
Cystic Fibrosis Trust
12/02/2016 at 18:04. Facebook
It's been a week since Elle shared her Christmas Star, Dr Ravi, with us all and we've been overwhelmed with the response and coverage it's had in the past week.
Cystic Fibrosis Trust
12/02/2016 at 15:30. Facebook
Doesn't time fly? If like us, you need a reminder of everything we've been doing, our Impact Report 2015/16 video has all the highlights.

For additional versions and more details head to

Impact report 2015/16 | Research

Join the fight for a Life Unlimited by cystic fibrosis. Visit https://www.cysticfibrosis.org.uk

YOUTUBE.COM
Cystic Fibrosis Trust
12/02/2016 at 12:39. Facebook
Going Christmas shopping this weekend? Thanks to cheerleader Emily and the generosity of the guys at Breezeboard Pro, you can get the perfect gift and support our fight for a life unlimited!

Swegways not your thing? You can find plenty of ways to support us this Christmas cysticfibrosis.org.uk/Christmas
Cystic Fibrosis Trust
12/01/2016 at 19:00. Facebook
The Cardiff Bay Run is back and, as their official Charity partner, we think it's better than ever! Why not join us as part of #TeamCF in 2017

Cardiff Bay Run

ht.ly
Cystic Fibrosis Trust
12/01/2016 at 12:49. Facebook
β€˜I Can’t Go To School Today: Jasper's Story' has scooped a children's BAFTA! The animated film features the real life Jasper, who has cystic fibrosis, talking about the daily impact it has on his life.

Cystic Fibrosis Trust - Boy bags bitesized BAFTA

cysticfibrosis.org.uk
Cystic Fibrosis Trust
11/30/2016 at 19:12. Facebook
How much of a burden does living with cystic fibrosis place on your pocket? Nearly 84% of you have already told us you worry about the extra expense CF can cause.

This is just one of the many issues our community have been telling us about via our insight survey. Want to let us know how cystic fibrosis affects you? Take our survey now.

The CF Insight Survey 2016

surveymonkey.co.uk
Cystic Fibrosis Trust
11/30/2016 at 09:35. Facebook
The European Cystic Fibrosis Society Patient Registry (ECFSPR) published their At-a-Glance Report for 2014. We are proud to contribute to the fantastic work of the ECFSPR and the UK CF Registry makes up around 1/3 of the data submitted to the registry.

Annual Reports | European Cystic Fibrosis Society (ECFS)

ecfs.eu
Cystic Fibrosis Trust
11/29/2016 at 15:00. Facebook
Have you heard us on the radio today? We've hit the airwaves to help ensure access to Orkambi for everyone that needs it. You can help us by writing to your MP - use our template to ask them to be a part of our parliamentary debate.

Stopping the Clock

cysticfibrosis.org.uk
Cystic Fibrosis Trust
11/29/2016 at 11:49. Facebook
Have you told Santa what you want for Christmas yet? Don't be left off his list, get down to his Hillside Grotto today!

You don't have to live in Northern Ireland to be a Christmas star this #GivingTuesday, head to for more ways to be full of festive spirit.
Do you know a talented young artist who could be the star of our 2017 card collection? As well their design appearing on the front of our cards next year, we'll send the lucky winner Β£100 in Sainsbury's vouchers!

Still need to buy your christmas cards? You can find our current range, including last year's winning design, in our online shop.

Card competition

cysticfibrosis.org.uk
Have you written to your MP about Orkambi yet? Why not take five minutes to add your voice to the debate today?

Access to Orkambi in England

campaigns.cysticfibrosis.org.uk
Who is your Christmas star? Help us say thank you and support them, like Elle has.

Be a star yourself and find out more at cysticfibrosis.org.uk/christmas
Hurrah! Dr Robert Gray, a leading researcher in CF lung inflammation at Edinburgh University, has been awarded a competitive Senior Clinical Fellowship.

Cystic Fibrosis Trust - Top CF researcher awarded Senior Clinical Fellowship

cysticfibrosis.org.uk
Raise your voice and be part of our Orkambi debate!

Share your story and help inform a parliamentary debate that aims to put pressure on the Government to help ensure access to Orkambi.

Add your voice to the Orkambi debate

cysticfibrosis.org.uk
Coming up in this week's CF News: Antibiotic Resistance and our CF Insight Survey.

Also, we want to know what you think of CF News. Let us know your thoughts on our fortnightly round-ups in the comments below.
Busy making the finishing touches to your Make your Mark entry? Our search for a logo for our Empowering Young Lives project closes this Sunday.

cysticfibrosis.org.uk/get-involved/pass-the-mic