Cystic Fibrosis Trust
03/26/2017 at 14:34. Facebook
It's been a glorious sunny day in London so far today.

Let's hope it's the same in four weeks time when Liam and the rest of #TeamCF hit the streets for the London Marathon

Team CF diaries: Why I run (Liam #3) | Get involved

One month until the London marathon - time to think about why we're all here. Join the fight for a Life Unlimited by cystic fibrosis. Visit https://www.cysti...

Cystic Fibrosis Trust
03/26/2017 at 10:03. Facebook
As the new issue of CF Life starts dropping through letterboxes this weekend, we were excited to see this piece about former cover-star Nathan Charles in the paper yesterday.

[ Link ]

Meet Bath hooker Nathan Charles, whose life-threatening condition makes...
Cystic Fibrosis Trust
03/26/2017 at 08:30. Facebook
Work at Sony Music UK? Do you know someone who does?

You’ve probably seen a lot about Alice Martineau recently, a singer with cystic fibrosis who passed away shortly after the release of her album by Sony Music UK which has recently been re-released to coincide with the publication of ‘A Song for Tomorrow’, a novel based on her life.

We’re now in the running to be their next charity partner...
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We need your help

Join the fight for a Life Unlimited by cystic fibrosis. Visit

Are you or do know an employee from Proxima Group? We need your help!

We’ve been nominated to be their next charity partner, staff are currently voting to choose and the vote closes this Friday!

So please help us fight for a life unlimited for all affected by cystic fibrosis by making sure your or those that you know at Proxima Group vote for the Cystic Fibrosis Trust!

We need your help

Join the fight for a Life Unlimited by cystic fibrosis. Visit

After your help in securing a parliamentary debate on Orkambi before Christmas, we’ve now met with the Minister responsible and are encouraged by willingness of the NHS, the Government and Vertex to get around a table for meaningful negotiations on getting Orkambi into the hands of those who need it

Orkambi: one foot in the door
Hot on the heels of our own film awards fun, our PhD researchers have been getting in on the act too.

Cystic Fibrosis Trust - Speedy science students shortlisted
‪So excited for Macaron Day down at Pierre Hermé Paris - London today. Thanks for all the support over the weekend too!‬
We couldn't let St Patrick's Day pass without a shout out to our fundraisers and community in the Emerald Isle, thanks to our latest Team CF diary from Liam Mc Hugh!

Team CF diaries: Happy St Patrick's Day! (Liam #2) l Get involved

Team CF marathon runner Liam gets a surprise on his run out. Join the fight for a Life Unlimited by cystic fibrosis. Visit

Getting excited for kicking of Macaron Day with Pierre Hermé Paris - London tomorrow. 1 donation = 1 macaron
Meet the first cystic fibrosis centres joining our Clinical Trials Accelerator Platform

Announcing the first Clinical Trials Accelerator Platform centres
Boom! We won silver at the Charity Film Awards last night!

A big thanks to James Delow and the whole Starstruck team who worked on our winning 'Breathe - LifeUnlimited' film and of course to our film star Sophie Grace Holmes too.

We're delighted that once again cystic fibrosis is being recognised in this way and that more awareness is growing beyond our ever dedicated and passionate community
It's time for March's CF News. This month, we're taking a look at where your money goes when it comes to funding ground-breaking research in cystic fibrosis through our Venture Innovation Awards
Really pleased that young researchers like Sara, who are funded by the Trust thanks to your donations and fundraising, are getting the opportunity to share their contribution to helping beat cystic fibrosis

Taking CF research to the Houses of Parliament
Exciting news that Nathan Charles is coming to Premiership Rugby!

Check out our interview with him, the first person with cystic fibrosis to play an international level professional contact sport in the Autumn edition of our magazine at [ Link ]
We've recently started talking a lot more about about gene editing and how it could help people with cystic fibrosis. But what is it, how can it work for CF and what do all the different terms mean?

Genome editing FAQs
British Science Week begins today. Learn about all the interesting science & research in cystic fibrosis at [ Link ]

Cystic Fibrosis Trust
Happy #InternationalWomensDay!

For the day, we've got a special competition for the fundraising women in our community - Two free passes, one for you and one for a friend, to the She Runs The Night 5k event, a women's only nighttime run in Edinburgh in August.

For you chance to win, just comment below on this post on this page by 5pm with which inspirational woman you would want to run...
View details ⇨

Cystic Fibrosis Trust - She Runs The Night 2017
Great to see Josh stepping up his training for 24hrs4cf, especially with the help of Darren Campbell. Looking forward to following his journey as we countdown to July.
Live with Alice Peterson reading from her book A Song for Tomorrow and taking your questiosn
Today is the anniversary of Alice Martineau losing her fight with cystic fibrosis.

Alice's life is fictionalised in the novel 'A Song For Tomorrow' (available in all good bookshops) and we'll be holding a Facebook Live reading tomorrow, followed by a Q&A session with author Alice Peterson, so tune in from 10:30am tomorrow and add any questions in the comments below.