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Cystic Fibrosis Trust
01/17/2017 at 16:34. Facebook
You sent the James Lind Alliance Priority Setting Partnership a staggering amount of unanswered questions, over 1000, last year.

Thanks to your involvement, they've now revealed the top ten research priorities for cystic fibrosis, as decided by our passionate and engaged community.

Cystic Fibrosis Trust - Your research priorities revealed!

cysticfibrosis.org.uk
Cystic Fibrosis Trust
01/17/2017 at 12:02. Facebook
Find out if you are one of our lucky Christmas raffle winners!

Whether your name was drawn or not, thank you to everyone who took part and supported our vital work to ensure a life unlimited for all those living with cystic fibrosis.

Cystic Fibrosis Trust - Christmas raffle

cysticfibrosis.org.uk
Cystic Fibrosis Trust
01/17/2017 at 10:18. Facebook
Don't follow the crowd this 'Ditch New Year's Resolutions' Day!

If you've resolved to help us beat cystic fibrosis for good, we'll be with you every step of the way.

Cystic Fibrosis Trust - Resolutions 2017

cysticfibrosis.org.uk
Cystic Fibrosis Trust
yesterday at 16:41. Facebook
"I am just so grateful that Helen's memory has given me the opportunity to do what I love the most and enabled me to keep my sanity after losing my job because my health got so bad. Thank you so much!"

Winning a Helen Barrett Bright Ideas Award last year meant Emilia could kick-start her business idea. Need help turning something you love into your career? Apply by January 31.

Cystic Fibrosis Trust - Helen Barrett Award

cysticfibrosis.org.uk
Cystic Fibrosis Trust
01/15/2017 at 09:40. Facebook
Check out The Sunday Times Magazine today for an excellent feature by author Alice Peterson on her new novel inspired by Alice Martineau & CF

Alice through the looking glass

thetimes.co.uk
Cystic Fibrosis Trust
01/14/2017 at 15:15. Facebook
Read all about it! Make sure you pick up a copy of the Sunday Times tomorrow to find out more about Alice Peterson's new novel inspired by the life of singer Alice Martineau, who had cystic fibrosis, and to read an exclusive extract.

A Song For Tomorrow | Alice Peterson | Author of The Things We Do For Love

alicepeterson.co.uk
Cystic Fibrosis Trust
01/13/2017 at 10:50. Facebook
What did you think of singer Martin Luke Brown's latest track '65 Roses? You can now watch the video for his tribute to his friend Emma, who had cystic fibrosis.

You might also recognise the video's star, Holly Van Geffen, who received a double lung transplant in 2015.

Martin Luke Brown - 65 Roses (Official Lyric Video)

Special mention to my best friend (double-lung transplant survivor) Holly Van Geffen for helping me with this. She's currently travelling Australia/New Zeala...

YOUTUBE.COM
Cystic Fibrosis Trust
01/12/2017 at 11:35. Facebook
Excellent to see people across the cystic fibrosis community recognised for their various work and contributions

Cystic Fibrosis Trust - Community figures get right royal recognition

cysticfibrosis.org.uk
Cystic Fibrosis Trust
01/11/2017 at 09:47. Facebook
We're paying tribute to one of our founders, Dr Archie Norman MBE, who passed away last month.

Founding member of the Cystic Fibrosis Trust passes away, aged 104

cysticfibrosis.org.uk
Cystic Fibrosis Trust
01/10/2017 at 12:49. Facebook
Our regional community & events teams can help you stick to your fundraising goals and share your stories on one of our four regional Facebook pages.

Cystic Fibrosis Trust South
Cystic Fibrosis Trust North
Cystic Fibrosis Trust East
Cystic Fibrosis Trust West

If you are not sure which region covers your area, message us with the first part of your postcode and we'll let you know which...
View details ⇨

Cystic Fibrosis Trust - Resolutions 2017

cysticfibrosis.org.uk
We're asking you to make your New Year's resolution to help us fight for a life unlimited for all affected by cystic fibrosis, but what about ourselves?

David Ramsden, our new CEO, shares his 2017 resolutions, so join him and choose yours at
Bighearted Leicester artist, Martin Luke Brown has released his new track 65 Roses, a beautifully stripped down tribute to a friend who had Cystic Fibrosis. Sounds like perfect weekend listening to us!

65 Roses

open.spotify.com
Following a full appraisal by the All Wales Medicine Strategy Group, Kalydeco will be routinely available for 2-5 year olds with gating mutations across Wales.

We are delighted that this age group in Wales will now have access to this life saving treatment.

Cystic Fibrosis Trust - Wales joins Kalydeco club

cysticfibrosis.org.uk
Is your goal for 2017 to get on your bike more? Don't miss your chance to join Team CF as we cycle through the capital and Surrey's stunning countryside.

Those of you looking for a slightly less challenging bike ride, we can help with that too: cysticfibrosis.org.uk/get-involved/fundraising/join-our-fundraising-campaigns/resolutions-2017/cycle

Enter now!

bit.ly
We've got just the ticket if one of your new year's resolutions is to do more of the things that make you laugh. Next week you can join a host of British comedians as they Stand Up for Cystic Fibrosis at The Old Vic Theatre.

Stand Up for Cystic Fibrosis - The Old Vic

oldvictheatre.com
Still can't decide on your new year's resolution? Why not pledge to help us beat CF for good and join our fight for a life unlimited?

Come on Team CF, there's a whole year of fundraising opportunities ahead of us, let's make the most of 2017!

Cystic Fibrosis Trust - Resolutions 2017

cysticfibrosis.org.uk
Ever wondered what it takes to get research published? Oli Rayner tells us how community responses to an online survey helped secure funding a clinical trial and led to the findings being published BMJ Open.

We've secured open access so everyone can read the full paper here: bmjopen.bmj.com/content/6/12/e012303.full

Cystic Fibrosis Trust - Survey success!

cysticfibrosis.org.uk
Happy New Year!

In 2017 there's plenty of ways to help us beat cystic fibrosis, so whether it's writing, running, wearing, baking, cycling, partying or more, pick your resolution for a life unlimited at cysticfibrosis.org.uk/resolutions2017

Cystic Fibrosis Trust - Resolutions 2017

cysticfibrosis.org.uk
Thank you to everyone who has given their time, money or voice to our fight for a life unlimited by cystic fibrosis this year.

Check out some of vital work you've helped make possible in our impact report and we'll see you all again in 2017!

Impact report 2015/16 | Research

Join the fight for a Life Unlimited by cystic fibrosis. Visit https://www.cysticfibrosis.org.uk

YOUTUBE.COM