Researchers looked at the short- and long-term effects of a febrile status epilepticus event on parent stress and their view of their child’s wellbeing. Read more here: [ Bit.ly Link ]
Researchers looked at the short and longterm effects of a febrile status

FEBSTAT Study: Parental Stress, Pediatric Quality of Life, and Behavior

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Run with the Marines and raise funds to stop seizures! The 42nd Marine Corps Marathon and 10K is the fourth largest marathon in the country. Join the Athletes vs Epilepsy team for this legendary race on October 22, 2017. Register today! [ Bit.ly Link ]
Run with the Marines and raise funds to stop seizures The 42nd

2017 Marine Corps Marathon & 10K

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Drea Perez
Tracy Tefft
Angela Cuccherini Moberley
Did you miss last week's Facebook Live, "New Seizure Classifications: Cutting Through the Confusion" with epilepsy.com Editor-in-Chief Dr. Joseph Sirven? The event included a discussion on the International League Against Epilepsy's new seizure classifications. Thank you to Dr. Sirven for taking time to discuss this important issue. Watch the recording here: [ Bit.ly Link ]
Did you miss last weeks Facebook Live New Seizure Classifications Cutting Through

Epilepsy Foundation

epilepsy.com
A commentary in JAMA Neurology reviews what is known about the Zika virus, brain cell development, and the risks of seizures/epilepsy.
Read a summary at: [ Bit.ly Link ]
A commentary in JAMA Neurology reviews what is known about the Zika

The Impact of the Zika Virus on Risks for Seizures and Epilepsy

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Anders, an Epilepsy Foundation Kids Crew member, was diagnosed with epilepsy in June 2016, almost 5 years after his first seizure. He is not letting epilepsy stop him from doing the things he loves. He plays soccer, hockey, basketball, and rides his bike. Now, Anders is teaching his classmates about epilepsy. He wants kids to find out more so they know what a seizure looks like and can help if...
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Anders an Epilepsy Foundation Kids Crew member was diagnosed with epilepsy in

Anders' Story

epilepsy.com
Dana Whitsett
Tone White
Judi Leinweber
The Medicaid programs covers 1/3 of the individuals living with epilepsy, including children, low-income adults, seniors, and individuals with disabilities. Don’t let Congress make massive changes to the program that will threaten this coverage. Tell your legislators that #MedicaidMatters here: bit.ly/EF-Act

Also share on Twitter why Medicaid is so important to you and to the 1/3 of people...
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The Medicaid programs covers 13 of the individuals living with epilepsy including
Rachel Sykes
Ro Lo
Patricia Hellen
Discover what's new this week with epilepsy.com Associated Editor and Community Manager Patty Shafer, RN. Read all or one of the new articles at: bit.ly/News41917

[ Soundcloud.com Link ]
Discover whats new this week with epilepsycom Associated Editor and Community Manager

Whats New April 19, 2017 by Epilepsy Foundation | Free Listening on SoundCloud

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Join us in congratulating Ryan who is now 2 years seizure free!
Join us in congratulating Ryan who is now 2 years seizure free
Deacon Michael Hopper Ofs
Buddy William Griffin
Denise Wilson
Epilepsy affects people of all nationalities, races, and ages. It doesn’t discriminate. When individuals and families come together around the country to Make a Stand Against Epilepsy with Lemonade for Livy, we are joining as one to show unity and to support the epilepsy community. We are making a stand to spread awareness and increase acceptance. We are making a stand to fund programs and...
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Epilepsy affects people of all nationalities races and ages It doesnt discriminate
Carrie Lynn Baker
Jeanine A Machell
Jennifer Travis
Essential Health Benefits are the only way to ensure that everyone in the epilepsy community receives the care they need. Insurance without these basic coverage requirement like prescription drugs, ER, and doctor visits isn’t really coverage. Tell your legislators to #SaveEHBs here: bit.ly/EF-Act
Learn more about our efforts to strengthen patient protections like these that were included in...
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Essential Health Benefits are the only way to ensure that everyone in

Support Access to Quality Health Care & Programs for People with Epilepsy

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Shelly Thomas
The family of Brian Danner, a father and husband that passed away from SUDEP in December 2016 at the age of 41, hosted a Light Up the Night event on March 26th in memory of Brian. Over 100 people came to remember Brian and lit purple bags in his memory. The Epilepsy Foundation extends our condolences to the Danner family on their loss and thank them for raising awareness for #SUDEP.

Read...
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The family of Brian Danner a father and husband that passed away

Maintaining a memory, extending awareness | News, Sports, Jobs - The Advertiser-Tribune

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Anne Render
Heather DeVore Lange
Margaret Gable
In a video from our partner The Charlie Foundation, Dr. Kossoff talks about common side effects from the ketogenic diet and how they are treated and prevented. Watch the video and find more information at: [ Bit.ly Link ]
In a video from our partner The Charlie Foundation Dr Kossoff talks

Dr. Eric Kossoff on Common Adverse Effects from the Ketogenic Diet

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Host a watch party for "Talk About It For Epilepsy!" Netathon Presented by Sunovion Pharmaceuticals on May 6th! A watch party is a great way to spend time with family and friends and #TalkAboutEpilepsy. Share your plans in the comments and social media with the tags #WhyIWatch.

Learn more about #Netathon2017: epilepsy.com/hollywood
Host a watch party for Talk About It For Epilepsy Netathon Presented
Calling all cyclists! Join #AthletesVsEpilepsy and the Epilepsy Foundation of Arizona for the El Tour de Tucson and experience the vistas of Arizona. See beautiful mountain ranges, majestic Saguaro cacti, and the scenic Santa Cruz river. Cyclists have 8 distances to choose from or can select to participate in the indoor El Tour stationary cycle ride.

Spots are limited, so register today: [...
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Calling all cyclists Join AthletesVsEpilepsy and the Epilepsy Foundation of Arizona for

El Tour de Tucson

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Essential Health Benefits are the only way to ensure that everyone in the epilepsy community receives the care they need. Insurance without these basic coverage requirements like prescription drugs, ER, and doctor visits isn’t really coverage. Tell your legislators to #SaveEHBs here: bit.ly/EF-Act

Learn more about our efforts to strengthen patient protections like these that were included in...
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Essential Health Benefits are the only way to ensure that everyone in

ACA

advocacy.epilepsy.com
A Washington Examiner story highlights the IAmEssential coalition response to the CMS announcement that it will review fewer #ACA marketplace plans for drug coverage. It will instead rely on states to conduct these complicated reviews. Enforcing patient protections is critical so people can access the medications they need and to guard against ACA plans' discriminatory benefit design. Read the...
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A Washington Examiner story highlights the IAmEssential coalition response to the CMS

White House to pull back Obamacare oversight

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Nicole Johnson
Shelly Thomas
Beth Rem
John Olson completed a 3-day backpacking trip in the Grand Canyon to spread epilepsy awareness. Participants in the epic hike included individuals all the way from Australia. John encouraged others in his group to share their experiences with their community. Thank you John for taking this extraordinary journey for epilepsy!

John pictured here with his dad Tom.
John Olson completed a 3day backpacking trip in the Grand Canyon to
Isabella Ruggieri
Andy Sloan
Susan Walcher Reed
Good luck to Scott Badzik, a runner living with epilepsy racing in the Boston Marathon today! Hear Scott's full journey with epilepsy from WCPO - 9 On Your Side: [ Bit.ly Link ]

Interested in starting to exercise or run like Scott? Our Wellness Institute has information on starting an exercise program at any fitness level! Learn more here: [ Bit.ly Link ]
Good luck to Scott Badzik a runner living with epilepsy racing in

Runner with epilepsy prepares to take on Boston Marathon

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Michael McGowan
Peter K Bawa
Kate Lawson
Register today for the END EPILEPSY SUMMIT on April 29, 2017, at the Hilton/Universal in Los Angeles. The Summit is organized by the Epilepsy Foundation of Greater Los Angeles (End Epilepsy) to connect individuals and families affected by epilepsy to each other and to the latest information about diagnosis and treatment. Learn about the topics being covered and how to register: [ Bit.ly Link ]
Register today for the END EPILEPSY SUMMIT on April 29 2017 at

Summit 2017 | End Epilepsy

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Researchers studied the number of seniors in nursing homes affected by epilepsy and seizures to help define their care needs. The study also examined the co-occurrence of epilepsy with other related conditions in this population. Read the article summary: [ Bit.ly Link ]
Researchers studied the number of seniors in nursing homes affected by epilepsy

Prevalence of Epilepsy and Seizures as a Comorbidity of Neurologic Disorders in Nursing Homes

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