"Change your expectations and learn to navigate your “new normal.” This one may be the toughest to accomplish.Your vision of what family life would and should be based on past ideas and hopes might need to be dramatically altered to allow for having an unpredictable illness."
"My treatment coincided with me undertaking a career change, so what would already have been an extremely intense time became gruelling. A week after my second operation, I was in a new job, chasing stories down all over London, while the stitches in my stomach were still healing and my hormones were flatlining."
From the unconcerned ("It can't be that bad") to the plain unhelpful ("Stop thinking about it"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our endometriosis is minimized and misunderstood.
"When hosting a dinner party (or a get together) take the time to share with your Chronically Ill friend ahead of time the ingredients of all of your dishes. This will save your friend any awkwardness of having to ask questions in front of the other guests and feel like a burden at the party."
We Try to Look Our Best
“But you don’t look sick” is one of the most common phrases you hear if you have invisible disease. Well yes, we try to look our best even on bad days when our body explodes from pain.
"Due to a complete lack of available knowledge, while already struggling with the devastating effects that endometriosis has had on my life for over 26 years, I find myself having to defend myself and the seriousness and extremes of the disease."