"I have spent 74 days stunned to silence by the amount of pain in my body, whilst similarly marvelling at the amount I’ve been able to carry on as normal, despite everything being so much more difficult."
"Change your expectations and learn to navigate your “new normal.” This one may be the toughest to accomplish.Your vision of what family life would and should be based on past ideas and hopes might need to be dramatically altered to allow for having an unpredictable illness."
From the unconcerned ("Think more positively") to the plain unhelpful ("It's all in your head"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our fibro is minimized and misunderstood.
"When hosting a dinner party (or a get together) take the time to share with your Chronically Ill friend ahead of time the ingredients of all of your dishes. This will save your friend any awkwardness of having to ask questions in front of the other guests and feel like a burden at the party."
"When my doctor gave me the diagnosis, the reality that I would never again feel “normal” settled on me like a sack of rocks. Simultaneously, relief and sorrow poured through me. On one hand, it validated my pain. Yes, I could tell the world, I was in pain. It was real. I wasn’t making things up so I didn’t have to work or do chores. On the other hand, the life I’d known was over. The chapter... View details ⇨