Team Epilepsy
Team Epilepsy
06/21/2017 at 16:34. Facebook
Blogger, Jordyn Smith, posted pictures of her nieces’ reaction to seeing her with EEG leads on her head.

Jordyn has epilepsy and wears the EEG leads to monitor her brain activity. The pictures have since gone viral, and people are even creating their own memes out of the photos.

Jordyn states, "I felt so embarrassed when I first had to wear the leads for three days and didn't even want to...
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Blogger Jordyn Smith posted pictures of her nieces reaction to seeing her

Baby has an adorable reaction to her aunt's EEG leads

mashable.com
Team Epilepsy
Team Epilepsy
06/19/2017 at 20:54. Facebook
Important message from @SUDEPAware: "Moving towards standardized reporting of SUDEP deaths on death certificates is ESSENTIAL to obtain accurate and reliable SUDEP incidence rates."

The incidence of SUDEP: A nationwide population-based cohort study

neurology.org
Jason Wiley
✨New Research Alert✨

About 30% of people with epilepsy are resistant to anti-epileptic drugs. A recent study set out to tackle this problem, and researchers identified a protein that may help epilepsy patients respond better to drug therapies.

Learn more by clicking the link below
New Research Alert About 30 of people with epilepsy are resistant to

Protein Identified That May Help Epilepsy Patients Respond to Therapies

epilepsynewstoday.com
Rachael Birch-Parr
Dani Grave
Rachel Dillard
Would you know what to do if you witnessed someone experiencing a seizure? A man jumped into a moving vehicle to save the life of a young driver with epilepsy. Check out the post below, which also contains some helpful links on how to help if you see someone experiencing a seizure.
Would you know what to do if you witnessed someone experiencing a

Man jumps into car to save seizure victim - CNN Video

cnn.it
Lisa Lavorato Bennett
Katie Moore
Tessa Colburn Bonvouloir
From Our Mailbox: (Service Dogs & Epilepsy)

Hi! I am considering getting a service dog and wanted anyone's experience/information about getting one.
Comment below!
From Our Mailbox: Service Dogs Epilepsy
Edward Crane
Amanda Dueck
Edie Joyce
Helpful information...
Helpful information

General Resources

bit.ly
For some people, talking about their epilepsy diagnosis is quite easy and natural, but for others it may be a little more difficult. Whether talking to your coworkers, partner, or friends - for some, it is a conversation that might be tough to start.

The Epilepsy Foundation of America shares some tips on how to broach this topic and how to answer some of the questions you may receive from...
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For some people talking about their epilepsy diagnosis is quite easy and

Talking with Friends and Family

epilepsy.com
Brandess Feuchster
Dizzy Richard
Researchers at the University of Sydney examined the prevalence and moderating factors of anxiety and depressive disorders among epileptics. Using 27 previously published research papers on this subject, researchers found that 20% of people with epilepsy had anxiety disorders, and 23% suffered from depression.

For those who suffer from anxiety or depression, how do you manage it? Do you have...
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Researchers at the University of Sydney examined the prevalence and moderating factors

People with epilepsy frequently suffer from anxiety and depression | Epilepsy Research UK

epilepsyresearch.org.uk
Amy Scalera
Edie Joyce
Kimberly Holleran
The CEO of Domino’s Pizza Canada, Michael Schlater, and his wife, recently donated $2 million to The Children’s Hospital Foundation of Manitoba (CHFM).

The money will go towards creating a pediatric epilepsy and pediatric neurosurgery program, since there are currently not many epilepsy programs in Manitoba.

Terry Klassen, CEO of the Children's Hospital Research Institute of Manitoba said,...
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The CEO of Dominos Pizza Canada Michael Schlater and his wife recently

Pizza tycoon donates $2M for children's epilepsy program

cbc.ca
Alexander McBean
Janel Marie Vargo
Mary Howard
Emma Louise
Safy M Elfikey
Todd Swedberg
Epilepsy affects 50 million people globally.
We love this piece from The New York Times, featuring eight men and women who in sharing the story about how epilepsy has touched their lives, are helping to educate others about what it means to live with this neurological disorder.
Check it out and share your thoughts below.
Epilepsy affects 50 million people globally

Patient Voices: Epilepsy

nytimes.com
Janel Marie Vargo
Jean Kamakeeaina
Beth Howis
Scientists at the University of California-Riverside have looked into why individuals with multiple sclerosis (MS) are up to 6 times more likely to have epilepsy. Read the article below to learn more.

Further research can help us to better understand the connection between epilepsy and MS and hopefully lead to therapies that may be able to help people living with these conditions in the future.
Scientists at the University of CaliforniaRiverside have looked into why individuals with

Epilepsy Link to MS Probed in Mouse Study Focusing on Myelin Loss

epilepsynewstoday.com
Doug Breland
Krista Gordon
Ann Corum
If you're someone who is always brimming with new and creative ideas, we want to hear from you today!

Help us pick a name for a website that would educate and connect people who have been affected by epilepsy and other chronic conditions by taking the one question survey below
If youre someone who is always brimming with new and creative ideas

Which URL do you like best?

bit.ly
Stress as a seizure trigger? ????
Check out this article and let us know your thoughts or experiences on the topic in the comments section below.

Recent research from the University of Cincinnati Epilepsy Center looked at the relationship between stress and increased seizure activity, and found that patients with higher anxiety levels were more likely to report stress as a trigger for seizures.
Stress as a seizure trigger Check out this article and let us

Study finds stress a common seizure trigger in epilepsy

upi.com
Catherine Boyle
Raye-Ann Aletha Farris
Krista Lockard
"It isn't just about actual seizures, it's what effect seizures have on your everyday functioning"
Darren M Gomes
Khaliya Collins
Heather Jordan
From Our Mailbox: (Vertigo & Epilepsy)

Has anyone else had to deal with vertigo alongside epilepsy? My daughter has epilepsy with absence seizures and has recently developed vertigo. She has been on the same meds since her diagnosis 5 years ago and the vertigo started a year ago, which has been very difficult for her and has caused her to miss a lot of school.

Does any one have any advice?...
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From Our Mailbox Vertigo Epilepsy Has anyone else had to deal with
Tracy Tucker
Alicia Rosaleen
Sara Hunt
FROM OUR MAILBOX: "Jokes about Seizures"

Has anyone been made fun of about their epilepsy diagnosis or been in a situation where others made jokes or uneducated and hurtful comments about seizures due to a lack of awareness about this condition?

If so, how did you deal with this situation? Please share your experiences with us in the comments section below.
FROM OUR MAILBOX: "Jokes about Seizures"

What I Should Have Told the People Who Made a Seizure Joke

themighty.com
Wesley C Kaake
Jessica Wright
Sumit Tanwar
Blogger, Ian Franks, who was diagnosed with epilepsy in 1972 writes for Epilepsy News Today, about the importance of knowing personal seizure triggers. He shares that in his experience, knowing his triggers has helped him take preventative actions to remove himself from potentially dangerous situations.

Let us know your thoughts in the comments section below.
Blogger Ian Franks who was diagnosed with epilepsy in 1972 writes for

In Reflex Epilepsy, Triggers Can Provoke Seizures; Avoid Them at All Costs

epilepsynewstoday.com
Catherine Martel
Joanne Stealey
Joanne Stealey
Today is Epilepsy Awareness Day!
Don't forget to wear purple to help increase awareness of Epilepsy in your community #purpleday2017
Today is Epilepsy Awareness Day Dont forget to wear purple to help
Janel Marie Vargo