The ALS Association
The ALS Association
yesterday at 19:34. Facebook
After a year and a half of research and collaboration, we've updated our Living with #ALS manuals. Learn more: [ Bit.ly Link ]
After a year and a half of research and collaboration weve updated

Announcing the Updated Living with ALS Resource Guide Series

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Jeff Houk
The ALS Association
The ALS Association
04/21/2017 at 23:38. Facebook
Who is ready to make a difference in their community? Start your fundraiser today! [ Bit.ly Link ]
Who is ready to make a difference in their community Start your fundraiser today

Step up in the fight to end ALS!

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Health And Wellness
Health And Wellness
The ALS Association
The ALS Association
04/21/2017 at 22:48. Facebook
We are excited to announce that Stephen Winthrop, who has ALS, has been elected Chair of our National Board of Trustees. “The coming months and years will be transformational for the fight against this dreadful disease, and I am honored to have been chosen to lead our Board of Trustees during such an exciting yet challenging time,” said Stephen. “After a career in political, corporate, and...
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We are excited to announce that Stephen Winthrop who has ALS has
Rosemarie Lambe
Mary Kay Turner
Joanna Dellaripa Rosenberg
The ALS Association
The ALS Association
04/21/2017 at 18:46. Facebook
Today's the last day to sign up for our National ALS Advocacy Conference happening in May! Learn more about opportunities to become an advocate in Washington, D.C. for people living with #ALS: [ Bit.ly Link ]
Todays the last day to sign up for our National ALS Advocacy
The ALS Association
The ALS Association
04/21/2017 at 17:03. Facebook
We are pleased to announce a partnership to update the ALS Online Genetics Database (ALSoD), the longest standing freely accessible ALS database in existence, with the MND Association and PatientsLikeMe. Learn more about this project: [ Bit.ly Link ]
We are pleased to announce a partnership to update the ALS Online

The ALS Online Genetics Database (ALSoD) Will Be Updated With ALS Association Funding

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The ALS Association
The ALS Association
04/20/2017 at 15:40. Facebook
The ALS Association's Care Connection program provides support to families and caregivers of people living with ALS by organizing volunteers from the community. Learn more about how the program is helping the ALS community: [ Bit.ly Link ]
The ALS Associations Care Connection program provides support to families and caregivers

Care Connection – Easing Stress on ALS Families

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Mark Cinq-Mars
Lisa Gilbow
Erin Ann
The ALS Association
The ALS Association
04/19/2017 at 18:31. Facebook
Outside researchers can ask the Agency for Toxic Substances and Disease Registry (ToxZone) to alert people registered in The National ALS Registry about ALS research studies. This addition will help connect PALS and researchers as they seek the causes of this disease. Visit The National ALS Registry to learn more about ALS research: [ Bit.ly Link ]
Outside researchers can ask the Agency for Toxic Substances and Disease Registry

CDC - Amyotrophic Lateral Sclerosis: ALS Papers

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Be The Best
The ALS Association
The ALS Association
04/18/2017 at 20:01. Facebook
We're proud to introduce Dr. Nicholas Olney, the 2017 recipient of the Clinical Research Training Fellowship in ALS Research Award given in partnership with the American Academy of Neurology (AAN). Learn more about his research at the UCSF School of Medicine aimed at developing clinical markers of disease progression. This is a major unmet need in ALS. [ Bit.ly Link ]
Were proud to introduce Dr Nicholas Olney the 2017 recipient of the
The ALS Association
The ALS Association
04/18/2017 at 12:02. Facebook
Hear from Ed Tessaro today during the CDC webcast at 1 pm ET as he explains what it’s like to live with #ALS: [ Bit.ly Link ]
Hear from Ed Tessaro today during the CDC webcast at 1 pm

National Amyotrophic Lateral Sclerosis (ALS) Registry

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Law of Attraction - Thoughts become things.
The ALS Association
The ALS Association
04/18/2017 at 01:35. Facebook
This new study from Dr. Patricia Andres of Massachusetts General Hospital shows promising results for potentially shorter clinical trials. Learn more about ATLIS Strength Testing here: [ Bit.ly Link ]
This new study from Dr Patricia Andres of Massachusetts General Hospital shows
Be The Best
Be The Best
The ALS Association
The ALS Association
04/16/2017 at 20:08. Facebook
Thanks to the National #ALS Registry, scientists are able to learn more about the disease directly from people living with ALS. Learn more about what researchers are uncovering and how their findings are benefitting the ALS community during the 4/18 CDC CDC webcast: [ Bit.ly Link ]
Thanks to the National ALS Registry scientists are able to learn more

National Amyotrophic Lateral Sclerosis (ALS) Registry

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Oliver Vicente
ALS is a disorder that affects the function of nerves and muscles. It is estimated that as many as 20,000 Americans have the disease at any given time. Learn more on our website: [ Bit.ly Link ]
ALS is a disorder that affects the function of nerves and muscles
Law of Attraction - Thoughts become things.
Ashley Cathlin Lovett
Colleen Desilets Silverman
Dr. Leonard Petrucelli at Mayo Clinic in Jacksonville, Florida and colleagues reported discovering a new ALS biomarker that specifically detects a protein made by the C9orf72 expansion, the most common inherited cause of ALS. The study was supported by The ALS Association and was featured on the front cover of Science Magazine's March issue. Learn more: [ Bit.ly Link ]
Dr Leonard Petrucelli at Mayo Clinic in Jacksonville Florida and colleagues reported

New C9orf72 Biomarker Shows Promise

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Terri Serene
Michelle Marie
Deb Wireman
Jim Harvey
Since 2010, the National ALS Registry has helped scientists research therapies to treat people living with #ALS. Learn more about the Registry and the challenges facing the ALS community during the CDC webcast on 4/18: [ Bit.ly Link ]
Since 2010 the National ALS Registry has helped scientists research therapies to

National Amyotrophic Lateral Sclerosis (ALS) Registry

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Michael Autry
Mike Davis
Tara Karl Knittel
Time is running out to sign up for our National ALS Advocacy Conference happening in May! Learn more about opportunities to become an advocate in Washington, D.C. for people living with #ALS: [ Bit.ly Link ]
Time is running out to sign up for our National ALS Advocacy

PREVIEW: 2017 National ALS Advocacy Conference – Register Now

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Michele Budy Holmes
Don’t miss the upcoming "Untangling the ALS X-Files" webinar on April 17! Hear from Dr. Bedlack as he discusses the world of alternative and off label #ALS treatments: [ Bit.ly Link ]
Dont miss the upcoming Untangling the ALS XFiles webinar on April 17

Webinars

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We have such amazing people making a difference in the #ALS community - let us know below who you are fighting for! You can also start a memorial or honorary fund in their name today. Learn more: [ Bit.ly Link ]
We have such amazing people making a difference in the ALS community

The ALS Association

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Sajeed Khan
Beautiful girl body
DYK: approximately 90% of #ALS cases are sporadic – meaning the cause is unknown? Learn more about research being conducted around sporadic ALS from our guest blogger, Dr. Sandrine Da Cruz from UC San Diego: [ Bit.ly Link ]
DYK approximately 90 of ALS cases are sporadic meaning the cause is

Misfolded SOD1 is not a primary component of sporadic ALS

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Christina Parker Kirk
Karmen Voeller
Kimberley Lentz
Thank you to the 52 House Representatives supporting the National ALS Registry by calling for $10 million in appropriations for Fiscal Year 2018. This funding will help continue vital work to prevent and find a treatment for ALS. [ Bit.ly Link ]
Thank you to the 52 House Representatives supporting the National ALS Registry
Kristi Driggers
Suzy Crump
Jan Tighe Hebert